The next Early Onset Dementia Support Group meeting will take place on Wednesday 27th July 2016.

The next meeting of the support group will take place on 27th July 2016, from 7.30pm to 9.30pm in the Boardrooms, 2nd Floor, Hunter Wing, St George’s Hospital, Blackshaw Road, London SW17 0QT .

Our guest speaker will be Heather Edwards from ‘Music Mirrors’ who will be facilitating an interactive workshop using an approach that captures key music pieces and links them to memories or significant moments in a person’s life  http://www.musicmirrors.co.uk/ 

There will also be an opportunity for people to talk with Nikki Zimmermann from the Alzheimer’s Society. Already known to many in the group, Nikki has recently taken up a new role as Dementia Support Co-ordinator based with Dr Jeremy Isaacs, Dr Peter Garrard, Jen Tulloch, Claire O’Neill and Kiran Hans-Tangri in the cognitive neurology team at St George’s Hospital. This role is specifically dedicated to supporting people with young onset dementia and their families before, during and after a diagnosis. Nikki will be available at the meeting on Wednesday to talk about the help she can provide for people both pre- and post-diagnosis.

In addition, we will be joined by Polly Sinclair and Aileen Jackson from the South London Health Innovation Network. Polly and Aileen are interested in talking to some people with dementia and family carers about a new dementia outcomes tool they are developing.  This will entail asking a short set of questions that relate to the dementia I-statements, to see if people with dementia find the questions relevant, and to explore whether the answers to the questions might be useful for service managers and commissioners of dementia services.

We will have a number of rooms available. We will start with a short presentation by Heather Edwards and then, after a refreshment break,  people will have the opportunity to engage either in a practical demonstration of ‘Music Mirrors’, or raise questions and issues with Nikki Zimmermann, or talk to Aileen and Polly about the dementia outcomes project; or a mix of all three. The session will be flexible, also enabling family carers to talk to each other about any issues that are of current concern.

If you have a mobile data device such as a tablet or ipad, please do bring it along as this will help with the ‘Music Mirrors’ session.

As always, the session will be supported by a number of Dementia Pathfinders’ facilitators and a member of the St George’s clinical team. If you are able to come to the meeting next Wednesday evening, we look forward to seeing you there. Please do extend an invitation to the meeting to anyone who you know who has a diagnosis of young onset dementia and to family carers.

The meeting will take place in the Boardrooms on the 2nd floor of the Hunter Wing, St George’s Hospital from 7:30pm-9:30pm.

If you have any questions, please feel free to contact Barbara Stephens from Dementia Pathfinders: barbara.stephens@dementiapathfinders.org or 07774 935905.

Future meeting dates will be announced in August.

14th May 2016

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