About

The Early Onset Dementia Support Group was set up in 2011 by the St George’s Hospital Neurology Department. The meetings run every four to six weeks and are designed to provide peer to peer support for people with young onset dementia, their families and supporters in a relaxed environment.

Each support group meeting includes a talk or presentation, a break out session for questions and activities and time to meet other people who are living with early onset dementia, their families and supporters.

The meetings are usually held at St George’s Hospital in the evenings with disabled friendly facilities and refreshments provided.

 

Next support group meeting

Date: Wednesday 27th June
Time: 6:30pm – 8:30pm
Location: John Parker Lecture Theatre, Atkinson Morley Wing

We welcome all young onset dementia patients and their families along for an evening of information, advice and support and most importantly the opportunity to meet others for peer support.

Dr Kiran Hans Tangri (Neuropsychologist) will be joining us to facilitate a short session on Carer Support in an adjoining room.

We will also be cognitive stimulating you all with a fun session of reminiscence of the 1960s and 70s. We would like you to ALL to bring along an item (object or photo) to tell a tale of personal importance from this era. We will end this with a quiz to keep those cogs turning!!

Your facilitators for the evening will be Nikki, Daniel, Maja and Alexia.

As always, the support group is there for meeting others in similar situation, sharing experiences and gaining peer support in a friendly, social atmosphere.

If you could please confirm your attendance it would be very helpful
nicola.zimmermann@alzheimers.org.uk
text 07894 810305

Next meeting: Wednesday 18th July 6.30pm

 

Find out about recent support group meetings

30th May 2018 – Active Engagement and London updates and opportunities. Guest Speaker – Sabrina Jantuah.

25th April 2018 – Our guest speaker was Lucy Whitman, author of  ‘People with Dementia Speak Out’ and ‘Telling Tales about Dementia: Experiences of Caring’ and regular writer for the Journal of Dementia Care.

28th March 2018 – We discussed making the most of the monthly sessions for all affected by young onset dementia and providing a service to meet the needs


10th August 2017 – We were joined by Ray Watters from Drum With Us http://drumwithus.co.uk/

4th May 2017 – We heard about day support at Mulberry Place, the outreach role of the dementia specialist nurses and the newly established dementia respite room.

15th March 2017 – We were joined by Ray Watters from Drum With Us http://drumwithus.co.uk/


3 March 2016 – We heard from Zoe Harris, who cared for her husband who had dementia. She shared some of her experiences and insights and more about the ‘Care Charts’ she created to communicate with care staff about her husband’s needs. Part of the session was also led by Circle Dance creative practitioner, Olivia McLennan. Circle Dance has its origins in folk dance and is particularly suitable for people with dementia.

21 January 2016 – Representatives from Royal Trinity Hospice spoke about the services available for people with dementia and families at the Hospice. There was also an interactive yoga and mindfulness workshop facilitated by Clare Morris.


24 November 2015 – The theme for the evening was ‘mind-body balance’ and was led by Marina Rova, a movement and dance psychotherapist. Marina spoke about coping with life changes that affect our physical, emotional, social and cognitive wellbeing. With the help of music, images and props, Marina encouraged the group to explore how our bodies are a resource for healing and creativity.

28 September 2015 – Jo Moriarty, social care researcher at King’s College London, spoke about the Care Act, direct payments, the role of social services and support for carers. She also led a discussion about how we can influence policy makers and commissioners to help increase investment into services that are age appropriate and suitable for people living with young onset dementia.

 22 July 2015 – Solicitor Shaun Parry-Jones led a discussion about Lasting Power of Attorney.

 

Would you like to attend the next support group meeting?

If you are would like to talk to us about the support group or are interested in attending the next meeting, please use the Contact Us form.

 

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