About

The Early Onset Dementia Support Group was set up in 2011 by the St George’s Hospital Neurology Department. The meetings run every four to six weeks and are designed to provide peer to peer support for people with young onset dementia, their families and supporters in a relaxed environment.

Each support group meeting includes a talk or presentation, a break out session for questions and activities and time to meet other people who are living with early onset dementia, their families and supporters.

The meetings are usually held at St George’s Hospital in the evenings with disabled friendly facilities and refreshments provided.

 

Next support group meeting

Date: Wednesday 19th December
Time: 6:30pm – 8:30pm
Location: John Parker Lecture Theatre, Atkinson Morley Wing (Behind Neurology Outpatients)

We welcome all young onset dementia patients and their families along for our Christmas Evening Support Group.

We will have festive mince pies and will be entertained by a couple of Musicians from BRIT School who will be doing some popular
Christmas songs.

It will also be a great opportunity to share our Christmas stories and share those important tips to ensure we all have a very Merry
Christmas.

We will end the evening with a traditional Christmas Quiz

Please feel free to dress Christmassy for the occasion

Looking forward to seeing you all,
Nikki, Daniel, Kiran, Maja and Alexa

If you could please confirm your attendance it would be very helpful – email nicola.zimmermann@alzheimers.org.uk or text 07894 810305

 

Upcoming Dates:
Wednesday 30th January 2019
Wednesday 27th February 2019
Wednesday 27th March 2019
Wednesday 24th April 2019
Wednesday 29th May 2019
Wednesday 26th June 2019
Wednesday 31st July 2019

Enquiries to nicola.zimmermann@alzheimers.org.uk or text 07894 810305.

 

Find out about recent support group meetings

30th November 2018 – Guest Speaker: Colin Morris – Dept. Work and Pensions

26th September 2018 – Guest Speaker: Joyce Mensah, (Complex Depression and Anxiety Service) ‘Keeping Good Mental Health’

18th July 2018 – Guest Speaker: Dr Dexter Penn, Money Management App

27th June 2018 – Reminiscing about the 1960s and 70s.

30th May 2018 – Active Engagement and London updates and opportunities. Guest Speaker – Sabrina Jantuah.

25th April 2018 – Our guest speaker was Lucy Whitman, author of  ‘People with Dementia Speak Out’ and ‘Telling Tales about Dementia: Experiences of Caring’ and regular writer for the Journal of Dementia Care.

28th March 2018 – We discussed making the most of the monthly sessions for all affected by young onset dementia and providing a service to meet the needs


10th August 2017 – We were joined by Ray Watters from Drum With Us http://drumwithus.co.uk/

4th May 2017 – We heard about day support at Mulberry Place, the outreach role of the dementia specialist nurses and the newly established dementia respite room.

15th March 2017 – We were joined by Ray Watters from Drum With Us http://drumwithus.co.uk/


3 March 2016 – We heard from Zoe Harris, who cared for her husband who had dementia. She shared some of her experiences and insights and more about the ‘Care Charts’ she created to communicate with care staff about her husband’s needs. Part of the session was also led by Circle Dance creative practitioner, Olivia McLennan. Circle Dance has its origins in folk dance and is particularly suitable for people with dementia.

21 January 2016 – Representatives from Royal Trinity Hospice spoke about the services available for people with dementia and families at the Hospice. There was also an interactive yoga and mindfulness workshop facilitated by Clare Morris.


24 November 2015 – The theme for the evening was ‘mind-body balance’ and was led by Marina Rova, a movement and dance psychotherapist. Marina spoke about coping with life changes that affect our physical, emotional, social and cognitive wellbeing. With the help of music, images and props, Marina encouraged the group to explore how our bodies are a resource for healing and creativity.

28 September 2015 – Jo Moriarty, social care researcher at King’s College London, spoke about the Care Act, direct payments, the role of social services and support for carers. She also led a discussion about how we can influence policy makers and commissioners to help increase investment into services that are age appropriate and suitable for people living with young onset dementia.

 22 July 2015 – Solicitor Shaun Parry-Jones led a discussion about Lasting Power of Attorney.

 

Would you like to attend the next support group meeting?

If you are would like to talk to us about the support group or are interested in attending the next meeting, please use the Contact Us form.

 

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